We went on our 3rd ever pass tonight. He picked put legos at Shopko and we saw the Lorax. He had his wheelchair but he no longer needs a car seat or booster - he is just sitting in the car like a normal 9-year-old should. He is saying the funniest things - "old personality" - they call it. Which just means that chase is attempting to break through.
As I looked down the row tonight at the movies, I pinched myself. I watched my kids enjoy the movie - all of my kids. I was in heaven...I was blind, but now I see.
Chase is slowly coming back to us. Today, in the automatic door as you enter and exit the hospital got stuck twice and chase said "you've got to be kidding me." and he says "I have no idea" (which is a chase-ism). Then tonight, his nurse was asking him how his bath went (he is bathing in a regular tub for the last 2 nights. he said good. She needed to know how much of the washing he did on his own. He said "my leg, my penis, my arms and pits." I said "oh yeah your pits!! You're getting stinkier by the day! What else stinks on you?" and without skipping a beat chase said "my farts!" he just roared with laughter. The nurses were hunched over. He is just edible.
He is OFFICIALLY a Rancho 7!!!! 3 more to move through. I am overwhelmed at his progress and continually pray for his final 2 weeks here. He had cognitive testing and he was fatiguing. The therapist said it was not due to mental fatigue - so when his dr came n we discussed his medication. He is on a muscle relaxer that had knocked him out cold (snoring) when my mom was here 2 weeks ago.
Well, now he won't nap as he was (no matter what I do) and just yawns. So the doctor called his primary doc (whose amazing!! And the head of the rehab dept) and she cut the dose in half. He wasn't as drowsy but I could tell he still was. They will look at using Botox for his leg if needed. However, when he gets into the bathtub for the last 3 nights he has lifted his right leg right over the tub ... He can do it!! Just need more practice. Just need to get that right leg fully awake and functioning to get off of the muscle relaxer. He will be off of the drowsy medicine by next Wednesday. Then, all he has left is another one at night which we will try something more natural his last few nights so that he isn't dependent on it for sleep.
We are going swimming with him tomorrow at Zermatt (thanks mom & dad!) and I'm anxious to see what his little body does under water.
I'm overjoyed that my baby is slowly coming back to us. It's a treat to see him love legos, say things he used to and just see his spirit in there. He is a miracle; and yes, angels walk these halls. I heard a doctor in my old ward in Midway say once in his testimony one Sunday that angels walked the halls, but I didn't know what it meant. Now I do.
Primary Childrens is an amazing place. It's a place of absolute miracles... My son is one of those precious tender mercies from the Lord.
Slow and steady,
Jen
Mormon 9: 15-21 (thanks Dawnelle)
15 And now, O all ye that have imagined up unto yourselves a god who can do no miracles, I would ask of you, have all these things passed, of which I have spoken? Has the end come yet? Behold I say unto you, Nay; and God has not ceased to be a God of miracles.
16 Behold, are not the things that God hath wrought marvelous in our eyes? Yea, and who can comprehend the marvelous works of God?
17 Who shall say that it was not a miracle that by his word the heaven and the earth should be; and by the power of his word man was created of the dust of the earth; and by the power of his word have miracles been wrought?
18 And who shall say that Jesus Christ did not do many mighty miracles? And there were many mighty miracles wrought by the hands of the apostles.
19 And if there were miracles wrought then, why has God ceased to be a God of miracles and yet be an unchangeable Being? And behold, I say unto you he changeth not; if so he would cease to be God; and he ceaseth not to be God, and is a God of miracles.
20 And the reason why he ceaseth to do miracles among the children of men is because that they dwindle in unbelief, and depart from the right way, and know not the God in whom they should trust.
21 Behold, I say unto you that whoso believeth in Christ, doubting nothing, whatsoever he shall ask the Father in the name of Christ it shall be granted him; and this promise is unto all, even unto the ends of the earth.
Jen, I'm so happy for you guys. Your son is Amazing and I am glad he is getting stronger and more and more like you remember him to be.
ReplyDeleteBig smiles for all of your family. Still trying to find a way to come and visit you guys, things have gotten busy and Carley got sick, but I will text you if I find a time to come down. My thoughts and prayers are with you guys constantly. Keep up the good work Chase!!
ReplyDeleteI love reading about his progress, your family is amazing!
ReplyDeleteRochelle